Greetings, Usher folks and allies –
It’s been nearly a month since I posted this site up in hopes there would be several dozen Usher’s flocking here and helping out. I even posted this link on my Facebook and only saw many Usher’s “liking” the site but not “sharing”/
This is one example of why many Usher’s aren’t vocal or recognized for their issues. Many people in the Deaf and Hearing communities are so ignorant (mostly unintentionally) about the needs and perspectives of Usher Syndrome, and in turn, many Usher people feel rejected or isolated.
This is now the time to spread awareness about Usher Syndrome. I have always been vocal and upfront about what I go through, what I need in terms of communication and support, and sharing what resources there are out there for parents, fellow Usher’s and varied community members. Because I SEE and FEEL that the people who learn more about this condition are more understanding, supportive and respectful towards Ushers if there is an open air about this.
However, people, just know that I can only do so much… I can plant a seed, encourage people to forge ahead with an idea, and advise – but I refuse to do something entirely on my own or with one or two other very motivated people. Sure, mega corporations and renowned organizations have blossomed with one or five people, but I have my limits.
If you are interested in helping out, leave a comment and your email address (fill in the comment information and email won’t show, I’ll only view it).
Spread the word. Please. Make this an international effort, not out of a house in a small town in Eastern Ontario, Canada.
Thank you. Ushers unite.